Support After Fetal Diagnosis of Abnormality
(From SAFDA South Australia)
Support groups and secure web-sites have been established to support parents and families before and after the termination of a pregnancy, following the diagnosis of abnormality.
The time of testing, diagnosis and decision making often seems unreal. Events can move very fast and there may be little time to reflect fully. The experience can be so deep that it may take months for its meaning to sink in. Family and friends may offer a lot of support at this time, but often they are also struggling to cope.
The loss of a wanted pregnancy is a very difficult time and it can be helpful to share and think about what has happened with others who have had a similar experience.
These groups are safe places for people to talk about their experiences, so everything discussed remains confidential and people need only to participate at a level that feels comfortable to them.
Contact your local Womens and Childrens hospital to see what services they can offer you and your family through this difficult time.
The Internet
The following websites explore the area of termination of pregnancy for fetal abnormality from the point of view of people who have been there.
A Heartbreaking Choice
This website has a moderated listserv.
Personal Experiences of Health and Illness
(Ending a pregnancy for fetal abnormality)
Antenatal Results and Choices
(ARC- UK based)
Books
These are the names of some books which you might find useful.
Pregnancy after a Loss
By Carol Cirulli Lanham
A time to decide, a time to heal
By Molly Minnick, Kathleen Delp and Mary Ciotti
Precious Lives, Painful Choices
By Sherokee Ilse
Still to beborn. A guide for bereaved parents who are making decisions about their future.
By Pat Schwiebert and Paul Kirk
Prenatal Testing: Making Choices in Pregnancy
By Lachlan De Crespigny
A Silent Love/Personal Stories of coming to terms with miscarriage
By Adrienne Ryan